Why contracts often reproduce hierarchy rather than protect lived experienced collaborators. We look at co-researcher contracts, university assumptions of “vulnerability” around mental health and lived experience, IP clauses, liability, and when refusing a contract is the ethical choice.
This session tackles university rules around “incentives” and payments, fair compensation, undocumented participants and people on benefits, and why universities routinely block ethical payment. Suggested Researcher: Someone from Survivor Voices would be good/ And/or someone from a university ethics committee who could provide constructive advice on how to communicate to a committee.
With Jo Law. This presentation shares the methodological design of her PhD, which explores working-class motherhood. It will explain why she chose a multi-level discourse framework, how she conceptualised each level and how she is working across micro, meso, and macro levels in her analysis. Focusing particularly on the meso level, she will draw on staff interviews alongside ethnographic observations in a community centre to explore how working-class motherhood is talked about and lived in everyday interactions.
People with lived experience are increasingly involved in (mental health) research as advisors, co-researchers and authors. This session will explore how lived experience (LE) roles are defined and described in ethics applications and funding applications, including who is considered a participant, what LE members are expected to do, and what responsibilities people can hold within projects.
This facilitated conversation brings together Olivia Matshabane and Monique Botha to examine how power, inclusion, and knowledge operate across neurodiversity research. Drawing on Olivia’s and other African scholars’ scholarship thinking about African neuroethics, cultural humility, and community-centred models of care, and Monique’s scholarship on neurodiversity as a collective, activist-led framework, the discussion will question whose knowledge shapes research agendas and whose lives are marginalised by dominant clinical and academic models. Together, they will explore what more accountable, political and decolonial directions in neurodiversity research might look like.
Deborah Chinn explores how she came to Conversation Analysis as a qualitative researcher working within a social constructionist understanding of intellectual disability, and how this approach resonated with her practitioner role as an NHS psychologist. She will explore the potential for CA research to inform communication training interventions that have the potential to ‘unmake’ competency-inhibiting interactions with disabled people.
Caroline C. Da Cunha Lewin (she/they) is a lived experience researcher and general nurse undertaking their doctorate in Health Service and Population Research, specialising in self-harm. Her work specifically uses qualitative methodology to consider the lived experience interpretation of self-harm. Other research interests include participatory methodology, social and trauma-informed understandings of mental distress and reflexivity in qualitative methods.
Join the NIHR Research Support Service (RSS) Hub at King’s College London for a taster training session on Using co-design in Health Services Research. This group session will provide a space to consider co-design and its application in your research and grant applications.
