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Parents get a lot of advice, and a lot of it is conflicting or inappropriate. Parenting research aims to be better than that – but is it, when neurodivergence is in the mix? This month Sohail speaks to Dr Victoria Castle about her participatory research using innovative qualitative methods to co-develop ways to measure parenting that work for neurodivergent parents and parents of neurodivergent children.
Dr Victoria Castle is a lecturer in psychology at the University of Chichester. She is a neurodivergent neurodiversity researcher who loves to use participatory research methods to centre the neurodivergent voice in her research and to ensure her research meets the needs and priorities of the community. Victoria’s research interests broadly cover neurodivergent family well-being. This includes research on parenting, mental health and well-being, the development of self-regulatory abilities, and the experience of neurodivergent individuals. She has recently developed new parenting measures aiming to be neurodiversity-affirming with the community as part of a project with colleagues at the University of Oxford.
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References and resources
- Participatory Autism Research Collective
- ‘I’m not just a guinea pig’: Academic and community perceptions of participatory autism research – Jacquiline den Houting, Julianne Higgins, Kathy Isaacs, Joanne Mahony, Elizabeth Pellicano, 2021
- Making the future together: Shaping autism research through meaningful participation – Sue Fletcher-Watson, Jon Adams, Kabie Brook, Tony Charman, Laura Crane, James Cusack, Susan Leekam, Damian Milton, Jeremy R Parr, Elizabeth Pellicano, 2019